Help groups on social media
People affected by an autoinflammatory disease often feel alone with their disease and misunderstood. It is normal to look for others, who are in the same situation. Everyone is welcome to our support groups. Our help groups are not only to provide emotional support, but also to educate/inform patients and their families. Patients share their experiences, frustrations, hardships, and feelings.
You are more than welcome to join any of our help groups.
Worldwide
Autoinflammatory diseases (international) Support Group
Global Pericarditis Support Group
Australia
Familial Mediterranean Fever (FMF)
Secret Psoriatic Arthritis Business
France
Fièvre Méditerranéenne Familiale
Maladies auto-inflammatoires systémiques rares
Germany, Switzerland, Austria
Autoinflammatorische Krankheiten (Kinder)
CAPS, TRAPS, HIDS, FMF, NOD2, NLRP12 (Erwachsene)
Familiäres Mittelmeerfieber FMF
Greece
FMF Support Group (Οικογενής Μεσογειακός Πυρετός Ο.Μ.Π. Ομάδα ασθενών Ελλάδας)
FMF – FAmilial Mediterranean Fever
Israel
Italy
Associazione Italiana Febbri Periodiche (AIFP)
Japan
Autoinflammatory diseases Japan (自己炎症疾患)
Morocco
Netherlands
Autoinflammatoire ziekten Nederland & België
Russia
Семейная средиземноморская лихорадка (FMF) Россия
Sweden
Medelhavsfeber och autoinflammatoriska sjukdomar i Sverige
Turkey
FMF & Behçet Support Group (FMF HASTALIĞI TOPLULUĞU)
Ukraine
Autoinflammatory Support Group (Автозапальні захворювання HIDS, TRAPS, FMF, CAPS та інші)
United Kingdom
Mevalonate Kinase Deficiency (HIDS/MA)
Stills Disease
United States of America
Behcet's Disease: You Are Not Alone
Familial Mediterranean Fever Support Group 1