Help groups on social media

People affected by an autoinflammatory disease often feel alone with their disease and misunderstood. It is normal to look for others, who are in the same situation. Everyone is welcome to our support groups. Our help groups are not only to provide emotional support, but also to educate/inform patients and their families. Patients share their experiences, frustrations, hardships, and feelings.

You are more than welcome to join any of our help groups.

Worldwide

Autoinflammatory diseases (international) Support Group

Global Pericarditis Support Group

Australia

Familial Mediterranean Fever (FMF)

Secret Psoriatic Arthritis Business

France

Fièvre Méditerranéenne Familiale

Maladies auto-inflammatoires systémiques rares

Germany, Switzerland, Austria

Autoinflammatorische Krankheiten (Kinder)

CAPS, TRAPS, HIDS, FMF, NOD2, NLRP12 (Erwachsene)

Familiäres Mittelmeerfieber FMF

Greece

FMF Support Group (Οικογενής Μεσογειακός Πυρετός Ο.Μ.Π.  Ομάδα ασθενών Ελλάδας)

FMF – FAmilial Mediterranean Fever

Israel

קדחת ים תיכונית משפחתית (FMF)

Italy

Associazione Italiana Febbri Periodiche (AIFP)

Japan

Autoinflammatory diseases Japan (自己炎症疾患)

Morocco

FMF Support Group

Netherlands

Autoinflammatoire ziekten Nederland & België

Russia

Семейная средиземноморская лихорадка (FMF) Россия

Sweden

Medelhavsfeber och autoinflammatoriska sjukdomar i Sverige

Turkey

FMF & Behçet Support Group (FMF HASTALIĞI TOPLULUĞU)

Ukraine

Autoinflammatory Support Group (Автозапальні захворювання HIDS, TRAPS, FMF, CAPS та інші)

United Kingdom

Familial Mediterranean Fever

Mevalonate Kinase Deficiency (HIDS/MA)

Schnitzler Syndrome

Stills Disease

UK Pericarditis Support Group

United States of America

Behcet's Disease: You Are Not Alone

Familial Mediterranean Fever Support Group 1

Familial Mediterranean Fever Support Group 2

PFAPA Support Group