What we want to achieve

• Provide patients with social and moral support, give them hope and let them know that they are not alone

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• Help to get patients promptly and correctly diagnosed

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• Assist patients, who find our online services, and educate them so that they can be their own advocate and connect them with help groups

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• Help the patients’ families to cope with a chronic inflammatory disorder and in dealing with local authorities, educational establishments, employers and disabilities

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• Raise awareness about these diseases all over the world, especially within the medical community

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• Provide information to patients on the various autoinflammatory diseases through our website

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• Offer a 24/7 helpline to our members​

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• Participate with other patient organizations and attend relevant conferences, to represent patients and their interests​​

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• Connect patients with volunteers in different parts of the world, who speak their native language

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• Connect with researchers and scientists to ensure a good exchange of knowledge and keep patients informed of new and relevant research articles

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• Conduct worldwide surveys in conjunction with the medical community to gain more knowledge on autoinflammatory diseases for the benefit of patients

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• Organize/offer continuing professional training for doctors/medical practitioners