What we want to achieve

• Provide patients with social and moral support, give them hope and let them know that they are not alone

​​

• Help to get patients promptly and correctly diagnosed

​​

• Assist patients, who find our online services, and educate them so that they can be their own advocate and connect them with help groups

​​

• Help the patients’ families to cope with a chronic inflammatory disorder and in dealing with local authorities, educational establishments, employers and disabilities

​​

• Raise awareness about these diseases all over the world, especially within the medical community

​​

• Provide information to patients on the various autoinflammatory diseases through our website

​

• Participate with other patient organizations and attend relevant conferences, to represent patients and their interests​​

​

• Connect patients with volunteers in different parts of the world, who speak their native language

​​

• Connect with researchers and scientists to ensure a good exchange of knowledge and keep patients informed of new and relevant research articles

​​

• Conduct worldwide surveys in conjunction with the medical community to gain more knowledge on autoinflammatory diseases for the benefit of patients

​​

• Organize/offer continuing professional training for doctors/medical practitioners