Goals
What we want to achieve
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Provide patients with social and moral support, give them hope and let them know that they are not alone
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Help to get patients promptly and correctly diagnosed
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Assist patients, who find our online services, and educate them so that they can be their own advocate and connect them with help groups
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Help the patients’ families to cope with a chronic inflammatory disorder and in dealing with local authorities, educational establishments, employers and disabilities
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Raise awareness about these diseases all over the world, especially within the medical community
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Provide information to patients on the various autoinflammatory diseases through our website
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Participate with other patient organizations and attend relevant conferences, to represent patients and their interests
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Connect patients with volunteers in different parts of the world, who speak their native language
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Connect with researchers and scientists to ensure a good exchange of knowledge and keep patients informed of new and relevant research articles
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Conduct worldwide surveys in conjunction with the medical community to gain more knowledge on autoinflammatory diseases for the benefit of patients
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Organize/offer continuing professional training for doctors/medical practitioners