EURORDIS Leadership School on Healthcare & Research

In November 2019, two members of the FMF & AID Global Association successfully completed the EURORDIS Leadership School on Healthcare & Research. Malena Vetterli (President & Executive director) completed the New Leaders programme, whereas Paul Morgan (Project Manager) completed the Advocates programme. These programmes were developed for European Patient Advocacy Groups (ePAGs), who have an official representation in one of the European Reference Networks.

17 views0 comments

Recent Posts

See All

Rare Disease Day 2021

The FMF and AID Global Association was invited to an online event organized by SOBI in Martinsried (Germany) on the occasion of Rare Disease Day 2021. Our organization invited several patients and one

International Survey on Autoinflammatory Diseases

The FMF & AID is carrying out a survey on autoinflammatory diseases on patients worldwide. This will hopefully provide valuable feedback on many areas. Your participation is vital to identify the area

FMF brochure

Our association, the FMF & AID Global Association, collaborated with the pharmaceutical company SOBI to produce a FMF brochure where the feedback of patients was actually requested and incorporated th