The FMF (Familial Mediterranean Fever) and AID (auto-inflammatory diseases) Global Association is a non-profit patient-led umbrella organization supporting 22+ affiliates, partners and serving autoinflammatory patients worldwide. Autoinflammatory diseases are caused by faulty innate immune systems (immune system) resulting in systemic inflammation (affecting the entire body). These diseases can impact people of all ages. FMF & AID is located in Switzerland with multilingual capacity, allowing our organization to be uniquely positioned to serve its multiple affiliates and partners located in many countries around the world. We currently support over 100'000 patients in 54 countries, in 18+ different languages and are continuing to expand. We aim to provide guidance, advocacy, information, support and education for our patient and medical communities, while raising awareness of what it means to have an autoinflammatory disease.
What we stand for
Our vision is to ensure that autoinflammatory patients live a pain-free and productive life by having access to knowledgeable physicians, timely diagnosis, and appropriate treatments.
We support the global RARE autoinflammatory community, both children and adults, by providing information, guidance, advocacy, raising awareness and support through targeted projects including financial assistance, educational tools, research, individualized support and collaborating with relevant stakeholders globally.
About the diseases
Autoinflammatory diseases are relatively unknown across the medical world and are considered RARE. Research of these diseases began in the 1990s and continues today, as over 40 diseases have been discovered. Due to the similarity of symptoms among these syndromes, and the lack of specific biomarkers for inflammatory measurements, they often remain unrecognized, misdiagnosed or undiagnosed.
Autoinflammatory diseases affect people of all ages and genders, and for many with these conditions, living what is considered to be a “normal” life can be difficult. Often pain, fevers, fatigue, and other symptoms impact a patient’s quality of life. As a consequence, many become a burden to both their families and the government/society.
Receiving medical diagnosis and care is often a large hurdle for autoinflammatory patients, as there is a lack of specialists globally. Often families must relocate, and others travel far or abroad to obtain appropriate help. Furthermore, once a specialist has been identified, it is likely there will be a long wait to be seen.
We strive for patients’ rights, so that each patient who suffers from an autoinflammatory disease can be diagnosed within one year and have access to the required medications.
Provide patients with support
Help patients receive a correct autoinflammatory diagnosis
Provide patients with educational materials
Educate the global medical community and offer professional training
Collaborate with other like-minded organizations
Connect patients with language appropriate volunteers
Keep patients informed of relevant and newfound research
Conduct worldwide surveys on the patient experience