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Medical Disclaimer

We provide information, raise awareness, help and guide patients, create online help groups for discussion and for patients to share their stories/experiences.

We DO NOT provide medical advice!

Please read these terms and conditions fully and carefully.  If you do not agree to be bound to each and every term and condition set forth herein, please exit our website and do not access, read or otherwise use information provided herein.

By accessing this website and/or reading its content, and/or using it to find information on any other website or informational resource, you acknowledge and agree that you have read and understood these terms and conditions, that the provisions, disclosures and disclaimers set forth herein are fair and reasonable, and that your agreement to follow and be bound by these terms and conditions is voluntary and is not the result of fraud, duress or undue influence exercised upon you by any person or entity.

All of the information and materials, including but not limited to, text, graphics, images and other material contained on the entire internet website are intended for general medical and health information and educational purposes only, and are not in any way intended to be used as a substitute for professional medical advice, diagnosis, treatment or care. To the contrary, persons who visit this site are encouraged to discuss any and all of this information with their own physicians. The purpose of this website is to raise awareness, help people understand their medical condition and provide useful information. The use of this website does not create a physician-patient relationship between the and the user of the site. Also, in no way obligates the to any follow-up or contact of any and/or all users of this website for any reason including, but not limited to, medical or health reasons. Persons who visit this site should in no way rely on any information provided on this site for their own health needs. All specific medical questions which arise as a result of viewing information on this site should be presented to your own physician for review. The aim of this site and of our organization is to encourage strong bonds between patients and their own doctors.

Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you read on this website or in any of our help groups on Facebook. If you think you may have a medical emergency, call your doctor or the Emergency number in your country immediately.

In consideration for your use of and access to this website, you agree that in no event will or any other party or person involved in creating, producing or delivering this website (including any and/or all of its contents) or any site linked to this website, be liable to you in any manner whatsoever for any decision made or action or non-action taken by you in reliance upon the information provided through this internet website and/or its links.

Copy and pasting our information onto other sites is strictly prohibited without previous permission. We encourage linking to content of our site and the individual pages within it. Copying content and linking to it are two distinctly different things.

While aims to receive funding from the pharmaceutical industry, in no way will that funding be associated with advocacy for any product, device, or drug. is prohibited by its governance policies from any endorsements in trade for financial support.  These donations in no way would create an advocacy position between and any particular company’s services or products.

Please send notice of any mistakes, corrections, additions, suggestions, and/or information to

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