Please donate to help support awareness.
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Account Name: FMF & AID Global Association
Bank: Credit Suisse (Schweiz) AG, CH-8070 Zurich
IBAN: CH84 0483 5217 4525 0100 0
Bank account: 217-4525-01
With your help we can continue to grow. Your support is greatly appreciated!
Registered non-profit organization no. CHE-400.064.574
The FMF & AID Global Association is registered in Zurich as a non-profit organization. Therefore, donations to the FMF & AID Global Association are tax deductible.
As a donor, you will decide the amount you wish to donate monthly. This amount set by you will be regularly withdrawn from the account determined by you, amount which will support the work of the FMF & AID Global Association. Your regular donation helps us to keep running the various support projects we have for patients and ensures that they receive the best possible support every time they need it.
Donations as a company
Of course, you can also support the FMF & AID Global Association as a company. We help those affected worldwide and depend on your generosity.
Donating instead of Gifts
Make a donation to the FMF & AID Global Association and make your business partners happy. With your help for example, we can continue to run the helpline for patients and their parents, organize meetings for those affected ones or a training course for health professionals on autoinflammatory diseases. Most patients are lonely. Most of them are ill and often unable to leave the house. Doctors are often puzzled because are rare diseases difficult to diagnose and treat. Our helpline understands how those affected or their children feel. We are often asked for specialists. Patients are listened to and taken seriously. The helpline is vital to the well-being of those affected and essential for their emotional stability. Your customers will certainly do without gifts when they find out the reason for the donation. Especially children will be incredibly thankful!
You may have a good reason not to donate your assets only to your children and relatives, but also to support other causes or non-profit organizations whose work you appreciate.
Potential new donors
Like every charitable organization, the FMF & AID Global Association needs private donations. Endowment contributions have a considerable advantage: They expand the capital of our organization and thus increase the possibilities of helping children with autoinflammatory diseases and their families.
Why donate to FMF & AID?
According to two studies, it takes on average 7.3 years for patients to get a diagnosis when facing an autoinflammatory disease and in other cases even 12 years or more. In over 50% of cases, it is greater than 10 years
Every year patients die unnecessarily. Many do not have a diagnosis in their lifetime (depending on where they live) due to the challenges in making a diagnosis
Rare disease affects ca. 30 million people in Europe and over half a million people in Switzerland (we calculate a few thousands with an autoinflammatory disease in Switzerland)
There are a few treatments available, but some of these drugs are very expensive and often not prescribed due to their excessive cost
Episodes of severe pain, which often go untreated (strong pain killers required, often opioid-based, which medical practitioners are reluctant to regularly prescribed due to perceived drug abuse)
Available medications only alleviate the symptoms because there is no cure
During the whole odyssey, patients and their families often feel isolated, misunderstood, ignored, neglected, disbelieved and even persecuted.
Quality of life can be severely affected: difficulty completing education, hard to hold down a job
How we help
Social media helpline for patients
Networking via social media portals
Providing emotional support to patients and their families
Rapid dissemination of medical and social information (studies, new drugs, etc.) through our website and social media groups
Participating in relevant international conferences and taking part in European projects and initiatives to help patients with autoinflammatory diseases (member of the RIPAG Council, ERN RITA)
We strive to be an information centre for patients
Advocating for patients
Helping patients to have access to difficult to obtain prescribed medications
Putting people in touch with patient associations in their countries