General Data Protection Regulation

Policy

 

By means of this privacy policy, we would like to inform the public about the nature, purpose and extent of the personal data collected, used and processed by us. In addition, we would like to inform you about the rights granted to you by means of this privacy policy. The FMF & AID Global Association, as the controller, has implemented numerous organizational and technical measures to ensure the most complete protection of personal data processed through this website. Nevertheless, Internet-based data transmissions can, in principle, have security gaps so that absolute protection cannot be guaranteed. For this reason, you are free to submit personal data to us in alternative ways, such as by mail or telephone.
 

General and statutory information

 

Note to the responsible body

 

The person responsible in accordance with the General Data Protection Regulations, other data protection laws in the Member States of the European Union and other provisions with a data protection character is:

 

FMF & AID Global Association

Schüracherstrasse 25a

8306 Brüttisellen

Switzerland

E-Mail: info@fmfandaid.org

 

Responsible entity is the natural or legal person who, alone or in concert with others, decides on the purposes and means of processing personal data (such as names, e-mail addresses, etc.).

 

Cancellation of your consent to data processing

 

Many data processing operations are only possible with your express consent. You can revoke an already given consent at any time. An informal message by e-mail sent to us is sufficient. The legality of the data processing carried out until the revocation remains unaffected by the revocation.

 

Right of appeal before the relevant supervisory authority

 

In the event of data protection violations, you, or the person concerned, have a right of appeal to the competent supervisory authority. The competent supervisory authority for data protection issues is the data protection commission of the canton of Zurich, where our non-profit organization is based. A list of data protection officers and their contact details can be found on the following link: 

https://dsb.zh.ch/internet/datenschutzbeauftragter/de/home.html

 

Right to data portability

 

You have the right to have data, which we process automatically, on the basis of your consent, or in fulfilment of a contract, delivered to you or to a third party in a common, machine-readable format, provided that such data is available in a common, machine-readable format. If you require the direct transfer of the data to another person in charge, this will only be done as far as is technically feasible.

 

SSL or TLS encryption

 

This site uses for security reasons and to protect the transmission of confidential content, such as requests that you send to us as a site operator, an SSL or. TLS encryption. An encrypted connection is indicated by the browser's address bar changing from "http: //" to "https: //" and the lock icon in your browser bar. If SSL or TLS encryption is enabled, the data you submit to us cannot be read by third parties.

 

Information, blocking, deletion

 

You have, in accordance with the legal and statutory requirements in force at any given time, the right to free information about your stored personal data, its origin and recipients and the purpose of the data processing and where applicable, the right to have this data corrected, blocked or deleted. For further questions about personal data you can contact us at any time at the above address.

 

Objection against advertising E-Mails

 

The use of contact data published within the context of the imprint obligation for the purpose of sending unsolicited advertising and information materials is hereby rejected. The operators of the pages expressly reserve the right to take legal action in the case of transmission of non-solicited advertising material, e.g. as spam mail.

 

Data collection practices on our website

 

Our website

 

Our website ("online presence") includes the domain:

 

fmfandaid.org

 

The following information refers to and applies to the domains mentioned above.

 

Hosting

 

Our website is hosted by:

 

Wix Inc.

 

The hosting services provided are for the provision of infrastructure and platform services, database services, computing capacity, security and storage space as well as technical maintenance services that we use to operate our online services.

Therefore, we or our hosting provider on our behalf, process inventory data, contact data, content data, contract data, usage data, meta and communication data of interested parties and the visitors of this online-service.
 

Basis

 

The basis for data processing is Art. 6 para. 1 lit. b DSGVO, which allows us to process data in order to fulfil a contract or pre-contractual measures.

 

Cookies

The internet pages partly use so-called cookies. Cookies do not damage your computer and contain no viruses. Cookies are used to make our website more user-friendly, effective and secure. Cookies are small text files that are stored on your computer and stored by your browser. By using cookies, we can provide you with more user-friendly services that would otherwise not be possible without the cookie setting. By means of a cookie, the information and services on our website can be in your interest. Cookies enable us to recognize you on our website. The purpose of this recognition is to make it easier for you to use our website.

 

Most of the cookies we use are so-called "session cookies". They will be deleted automatically at the end of your visit. Other cookies remain stored on your device until you delete them. These cookies allow us to recognize your browser on your next visit.

You can set your browser so that you will be informed about the setting of cookies and allow cookies only in individual cases, exclude the acceptance of cookies for certain cases or in general, and activate the automatic deletion of cookies when closing the browser. Disabling cookies may limit the functionality of this website.


Server log files

 

The provider of the pages automatically collects and stores information in so-called server log files, which your browser automatically transmits to us. These are:

  • browser type and browser version

  • used operating system

  • referrer URL

  • host name of the accessing computer

  • time of the server request

  • IP address

 

and other similar data and information used in the event of an attack to our information technology systems. There is no merge of this data with other data sources. When using this general data and information, we draw no conclusions about you. Rather, this information is needed to

 

  • to deliver the contents of our website correctly

  • to optimize the content of our website as well as its presentation

  • to ensure the permanent functionality of our information technology systems and the technology of our website, as well as

  • to provide law enforcement with the necessary information for prosecution in the event of a cyberattack.

 

This anonymously collected data and information is evaluated by us, on the one hand statistically and further with the aim to increase the data protection and data security in our organization, in order to ensure an optimal level of protection for the personal data processed by us. The anonymous data of the server log files are stored separately from all personal data provided by you.

Contact / contact form

 

You have the possibility to contact us (for example via contact form, e-mail or via social media channels). When you contact us, your details will be recorded for the purpose of processing your contact request and its handling. The personal data which is transmitted to us in the input mask, is that which will be used for establishing contact with you if needed. The personal data entered by you is collected and stored solely for internal use and for our own purposes.

 

By registering on our website, the IP address assigned by the Internet service provider (ISP), the date and time of registration are also stored. The storage of this data takes place in the background only so that the misuse of our services can be prevented, and this data if necessary, can be used to clarify committed offenses. In this respect, the storage of this data is required to secure us. Personal data will not be given to third parties, as long as there is no legal obligation to disclose it or disclosure is required by law enforcement services.


Social media, plug-ins and tools

 

Use of social media


We use a variety of online sites within social networks and platforms (e.g., Facebook, Instagram, YouTube, Twitter, etc.) to communicate with users, and to provide information about our services. When you visit another network or platform, the business connections and privacy policies of each operators apply. Your personal data will be processed in accordance with EU and Swiss data protection regulations, as well as the data of the users, if you or other users communicate with us within the social networks and platforms, e.g. write posts on our online groups and send us messages.

 

YouTube

 

We embed the videos on the YouTube platform of Google LLC, 1600 Amphitheater Parkway, Mountain View, CA 94043, USA.

If you visit any of our YouTube plug-in-enabled sites, you will be connected to the YouTube servers. This tells the YouTube server which of our pages you have visited. If you are logged in to your YouTube account, YouTube allows you to assign your surfing behaviour directly to your personal profile. You can prevent this by logging out of your YouTube account.


Analysis Tools and advertising

Google Analytics

 

This website uses functions of the web analytics service Google Analytics. Provider is Google Inc., 1600 Amphitheater Parkway, Mountain View, CA 94043, USA.

Google Analytics uses so-called "cookies". These are text files that are stored on your computer and that allow an analysis of the use of the website by you. The information generated by the cookie about your use of this website is usually transmitted to a Google server in the USA and stored there.

Your rights in connection with personal data


Information, rectification and transmission

 

You can request information about your personal data stored with us about. You are also entitled to request the correction of incomplete, incorrect or outdated personal data. To the extent required by the applicable law, you may also request that we disclose personal information that you provide to us or to other companies.

 

Contradiction

 

We respect your right to object to any use or disclosure of your personal information that is not

- legally

- required for our legitimate needs

- to fulfil a contractual obligation

 

If you object, we will work with you to come up with an acceptable solution. You may also, at any time, withdraw the consent given to us with regard to the processing of your personal information.

 

Deletion

 

You have the right to have your personal data deleted in accordance with the law. This applies, for example, if your data is outdated or processing is not required or unlawful; if you withdraw your consent to any processing based on such consent; or if we find that we should oppose an objection raised by you against processing on our part. Under certain circumstances, we may need to keep your personal information in accordance with our legal obligations or to assert, exercise or defend any legal claims. Legal retention periods remain unaffected.
 

Final clause

We may amend our Data Protection Policy at any time by posting it on our website.

logo ePAG.png
Global-Genes-Logo.png
Eurordis Web.png
ThinkGenetic-Logo-Transparent-Web.png
Logo_RareConnect-Web.png
Copyright © 2019 FMF & AID Global Association. All rights reserved – CHE-400.064.574